Sunday 4 September 2011

Ok, start again...

It's gotta be said, i've let this blog start. After an enthusiastic start, i was kinda hampered by a course of IVs that gave me "severe renal impairment" (Whoopee!!) and ended up being admitted only to find i had a blockage in my small bowel - can happen in CF, called DIOS (don't ask me what it stands for!) - and losing 1 and a half stone in a week! Great!
Although, i did come out of hospital feeling the best i'd felt in 14 years (!!!) I'd lost so much muscle i was starting from scratch, and, yes, as soon as i started exercising again, the infection that had caused all this in the first place flared up again. Hurrah! So, we've had 8 weeks trying to work out what to do, including trying an antibiotic i've been allergic too since i was 5, and, yes, i'm still allergic too!! Still got a bit of a rash to show it.
So now what? Well, i'm doing ok, but breathing is bit crap, got no energy, and basically back at square one! So, tomorrow, i'm going to call the hospital and try and get in for some more IVs (of my choosing, this time!) and start again. We have a couple of ideas up our sleeves, but i really want to get fit again before we "try" anything else...

Wish me luck! :)

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